Welcome to the neonatal palliative care guidance page .
Around 35,000 babies are are born each year in Wales and 9 - 10% of these will need admission to a Neonatal Unit. Sadly some of these babies will die either in hospital or be discharged with a life-limiting illness to community settings where they can best be supported with palliative and end of life care. It is crucial that these babies receive holistic end of life and palliative care whilst their families and carers are supported through a very difficult and challenging time.
The following documents provide a framework and set of tools to assist health care professionals with their care provision, trying to ensure the right conversations take place at the right time, in the right place and with the right people. This then should hopefully result in the very best care possible being provided.
Guide to using the resources:
These resources have been designed collaboratively by the neonatal and palliative care networks as a result of a wide, multi-disciplinary and cross-organisational collaboration. We hope these documents and the information they contain will be welcomed as helpful tools for anybody providing palliative and end of life care in a multitude of settings and places, but always with the baby and their family at the centre. Please send us your comments and feedback after using this page and resources.