External Guidelines & Resources
Neonatal:
Transition to Adulthood:
Ethics and Law:
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GMC Good medical practice – Guidance for doctors in communication, decision making and ethical duties.
Symptom Management and Medications:
General Care
Bereavement Care
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Swansea Bay Health board Information for bereaved siblings -a resource designed by the Swansea bay health board paediatric palliative care team.
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Winston’s Wish – Support for Bereaved children and families.
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Child Death Helpline - Offers support for anyone affected by the death of a child of any age, under any circumstances, however recently or long ago. Website offers information about arranging a funeral.
Helpline: 0800 282 986 (freephone) or 0808 800 6019 (freephone for mobiles). Every
evening: 7pm – 10pm, Mon – Fri: 10am – 1pm, Tues & Wed: 1pm – 4pm. Calls are answered by a bereaved parent volunteer. There is an interpreting service available through thebigword telephone interpreting service.
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2 Wish Upon A Star: offers support for parents bereaved of a child through a sudden death. Offers counseling for parents and support groups based across South Wales. Contact via phone or email to arrange support: 01443 853125 (Mon – Fri, 9:30 – 2:30) orsupport@2wishuponastar.org
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Sands - Offers support to anyone affected by the death of a baby.
Online information on the effects on the family of losing a baby,information on the process of arranging a f funeral. Offers a befriending service.
Helpline: 020 7436 5881. Mon – Fri: 9:30am – 5:30pm, Tues & Thurs: 6pm – 10pm.
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Hope Again Offers support to children and young people affected by bereavement.
Part of Cruse bereavement care.
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Grief Encounter - Offers support to children, young people and families who have been affected by bereavement. Online support: kids zone, teen zone and online memory board.
Helpline: 020 8371 8455. Mon – Fri: 9am – 5pm.
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Rosie Crane Trust Offers support to parents following the death of a child of any age.
Helpline: 01460 55120
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Hope Support Offers online support via Facebook or Skype to young people aged 11+ when a close family member is diagnosed with a terminal illness.
Other Useful support
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Childline: 0800 1111 - 24hours, 7days/week. You can also sign up for an account with Childline to email or chat 1-1 with a counsellor.
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Samaritans: 08457 90 90 90 - 24 hours, 7days/week. 0300 123 3011 – Welsh language line, open daily: 7pm – 11pm. Email: jo@samaritans.org or Cardiff branch is 75 Cowbridge Road East, Cardiff, CF11 9AF (02920 344022).
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Papyrus: an organisation set up for the prevention of young suicide. Operates HopeLine: 0800 068 41 41 – offers support to young people who are thinking about suicide, or emailpat@papyrus-uk.org or text 07786 209697
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Calm: an organisation set up for the prevention of male suicide. Operates a helpline for men: 0800 58 58 58, 7 days a week, 5pm – midnight. Calls are anonymous and confidential.
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Young Minds Parent Line: 0808 802 5544 – Mon – Fri: 9:30 am – 4pm orparents@youngminds.org.uk Offers support to parents who are worried about emotional, mental and behavioural issues in young people.
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Mind: 0300 123 3393 Mon – Fri 9am – 6pm or text 86463. Offers support on a range of mental health issues.
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Kooth: www.kooth.com offers free online counselling for 11-25 year olds in Cardiff.
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The Family Institute Psychotherapy Service: Offers individual, couple and family psychotherapy, with fees charged on a sliding scale based on family income. There are also reduced fee sessions offered by trainee psychotherapists supervised by a qualified member of staff. Families can refer by calling 01443 483820 or emailingfamilyinstitute@southwales.ac.uk
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2Talk2: School-based counseling service for secondary schools in Cardiff provided by Action For Children. Offers support for young people aged 11 – 19, and 16 – 25 year olds not currently engaged with education, training or employment. Young people can self-refer (please ask pastoral team for details of how to refer) or can call: 02920 487356.
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Grandparents Plus: offers support and advice to Grandparents and other family memberswho are caring for a relative’s child (kinship care). National helpline: 0300 123 7015 (Mon –Fri, 10am – 3pm). Website: http://www.grandparentsplus.org.uk Also offers a monthly support group in Cardiff for Grandparents raising grandchildren, contact Lee Dirkzwager atgrgsupportcardiff@hotmail.com or 07759 241720 / 07875 732237.
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https://www.dewis.wales/ :Dewis Cymru is the place for information about well-being in Wales.
They have information searrchable by postcode about local organisations and services that can help, for both adults and children. -
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Other organisations that can support families
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www.butterflywishesnetwork.co.uk www.councilfordisabledchildren.org.uk
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Websites for professionals interested in palliative care
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