The network hosts a range of events for professionals including the annual conference (2023/24 dates tbc), online training and regional workshops.
In addition there are quarterly network meetings and subgroups ( Transition, education and training, PAC planning).
All events and training are open to all professionals working across the principality with children and families in palliative care services.
Neonatal palliative care focus
National botanic gardens for Wales
Tuesday 17th October 2023
Rolling out across all Welsh health boards 2023/24
Check back for more details soon.
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Cardiff University offers a distance learning programme in palliative medicine(doctors) and palliative care ( non-medical health care professionals) with a paediatric module. They have been specifically designed for the varying needs of busy practitioners working in differing clinical settings across the globe. In recognition of paediatric palliative medicine becoming a sub-specialty, paediatric palliative care is now fully integrated throughout the diploma course. The course is able to offer a brief overview of paediatric palliative care for generalists with an interest or more in depth study for those who specialise in paediatric palliative care.
The Postgraduate Diploma is structured over 2 years leading to a postgraduate qualification in its own right, or contributes academic credits towards the award of the MSc. The MSc qualification is gained through successful completion of a dissertation over a further year.
ICPCN e-learning module in chronic pain management: http://icpcn.org.uk
EACH Library and Information Service: https://www.each.org.uk/how-we-help/for-professionals/library-and-information-service
PROFESSIONAL DEVELOPMENT RESOURCES
Basic Symptom Control for children’s palliative care: https://www.togetherforshortlives.org.uk/resource/basic-symptom-control-paediatric-palliative-care/
Palliative Care Formulary, Bulletin board, shared guidelines: www.palliativedrugs.com
Mental Capacity Act 2005 training module: https://www.e-lfh.org.uk/programmes/mental-capacity-act/
Searching the literature
If you're looking for literature specifically relating to children and young people's palliative care, Synopsis is the place to go. Published twice a year by Together for Short Lives, it contains hundreds of articles drawn from medical, nursing and social care journals. You can view issues from the last five years or search the online database. The latest issue December 2020 is available here
The Oxford of Palliative care for Children (2nd edition) 2012
Edited by Ann Goldman, Richard Hain & Stephen Liben
The Oxford Specialist handbook in Paediatric Palliative medicine
Richard D.W Hain & Satbir Singh Jassal
Palliative Care for Infants, Children and Adolescents ; A Practical Handbook (2nd edition) 2011
Edited by Bran S. Carter, Marcia Levetown and Sarah Friebert.
Palliative Care nursing of children and young people. 2007
Perspectives on Palliative care for Children and young people: A global discourse 2010
Edited by Rita Pfund & Susan Fowler-Kerry