Paediatric palliative care in Wales: Trends in prevalence and complexity - New Research

ALL WALES MANAGED CLINICAL NETWORK FOR CHILDREN'S PALLIATIVE CARE
This site is part of the Palliative Care Matters network of sites. It is aimed at health-care professionals working in the palliative care field


There are estimated to be around 49,000 children and young people living with a life threatening and / or life limiting illness across the UK as a whole and this number is rising. Often these young people have very complex care needs and are supported by many professionals. Families require support from teams who can work together and need to know who to turn too for advice. Oft
The aim of the network is to support children and their families with life-limiting conditions by facilitating the delivery of appropriate specialist care in whatever clinical environment the child is located.
POWEPOINT LEARNING RESOURCES
The following PowerPoint presentations have been provided by members of the managed clinical network for the use and information of others. The authors are happy for others to use them for their own education and to use in educating colleagues. Please adapt as you see fit, but recognize the original author.
Please note, it is the responsibility of the reader to ensure that the details remain up to date and accurate before adopting any part of these presentations.

SYMPTOM MANAGEMENT GUIDELINES
This document was written in January 2016. Whilst every effort has been made to ensure all information is accurate it remains the responsibility of the prescriber to check this information against the most current available before administering any of the drugs in this document.
It is important to note that the doses of the same medication may vary for different indications and this document should be consulted by symptom section rather than drug name.
Further information r should be sought from more detailed texts such as APPM Master Formulary and the British National Formulary for Children.

CONTACT US
During office hours
Please contact either of the palliative care secretaries by phone or by email:
Jodie Marks 029 2182 4590 (Jodie.Marks@wales.nhs.uk)
Lisa Webb 01792 516481 (Lisa.Webb2@wales.nhs.uk)
Lisa or Jodie will take the details and route the call to the appropriate member of the PPM team. One or both of the secretaries are normally available during office hours.
2. Out of office hours
Please contact the on-call consultant in paediatric palliative medicine through switchboard at UHW 029 2074 7747. The PPM on-call rota is held by switchboards at UHW and Tŷ Hafan Children’s Hospice. Please note that out of hours we are only able to offer telephone advice.

029 2074 7747